CMTA Research Update

Presented at the 2018 CMTA Seattle Patient & Family Conference by Amy J. Gray Chief Executive Officer Charcot-Marie-Tooth Association Amy brings to the CMTA more than 17 years of management experience in national voluntary health agencies, combined with a strong understanding of mission-driven organizations. Her experiences working for three major non-profit health care organizations have shaped her expertise in fundraising, staff development, financial and operational management, strategic planning and community engagement. Amy was most recently the senior vice president of constituent and community relations for the National Parkinson Foundation (NPF), responsible for providing the overall leadership, strategy and vision for the foundation’s fundraising efforts, planned giving legacy society and network of chapters. She joined the NPF in 2013 in the role of vice president of chapter relations and community partnerships, providing guidance to its nationwide network of affiliates in organizational, mission, board and fund development activities. In 2014, she led the foundation and its affiliate chapters through a process of unification, integrating the chapters and foundation into one organization. Before joining the NPF, Amy served in executive roles at the Crohn’s and Colitis Foundation of America and the Muscular Dystrophy Association, where she successfully built strong chapters and robust relationships with donors, volunteer leaders, and key stakeholders.