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My doctor referred me to an Infection Disease Specialist who prescribed Albendazol for me to begin taking immediately and for a re-aspiration of the cyst. All the literature the doctors could find said that a cyst my size should be removed surgically, resecting, or removing, part of the liver. But the doctors felt that since I had tolerated the procedure so well that last time that it might work to try it again and not have to have major surgery. They would aspirate the fluid again, then infuse a dye to rule out any extensions into other portions of the liver, and then inject an alcohol solution to kill the worms and help sclerosis in so it would collapse and adhere to itself.
This procedure was attempted, but concern of the color of the fluid (milky not clear), caused them to terminate the procedure waiting for lab results. I was hospitalized and put on IV antibiotics, with the tube in my liver through my chest still in place. I spiked a temperature of 104 degrees. After a few days of antibiotic treatment my temperature came back down and no bacteria was found upon the culture of the aspirant and the procedure was redone to completion.
I initially felt better with the pressure reduced as the CT scan now indicated that only 20% of the cyst remained open. However symptoms soon returned and another CT scan done three weeks later showed it 50% full of fluid again.
The Infection Specialist went to the hospital to look at the path slides and confirmed it was indeed the Hydatid “worms”. He recommended another aspiration of the cyst. I was really tired, sore, and becoming depressed over this whole situation. I expressed my desire to explore my option of surgical removal of the cyst. He recommended a liver specialist in Seattle. He explained that the surgery would be quite difficult and that the recovery would be about two months.
The Seattle doctor called me after seeing my CT scans and pathology reports. He said “the aspirations would never work on a cyst that size.” This was a bit disappointing as I had been billed over $20,000 so far and I still had the cyst!
I asked the doctor if he had a lot of experience with Hydatid Disease, since I was referred to him. He responded that he had only five patients with this disease
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